10/12/10 - Medical Update

There has not been much to blog about for the past few months. Gabrielle has gained weight and stayed healthy since she was discharged from the hospital back in May. However, she did get sick a little over two weeks ago. We went to the CF Clinic and she was placed on Augmentin and Zyrtec. These drugs have cleared up her respiratory and allergy issues but the Augmentin has created some issues of its own.

We took Gabrielle back to the CF Clinic today due to her not being able to hold all her feedings down and her having watery bowel movements. Both of these can be a result of the Augmentin suppressing the good bacteria in her digestive system and allowing the bad bacteria to thrive. We took some stool samples to the clinic so they can be tested. In the mean time we are treating her as if she has C. Diff. she had this back during her last hospital stay.

While at the hospital we also stopped by the Surgery Clinic and had her MicKey Button replaced. We have to return in three months to have it replaced again. But during this visit the nurse will watch me replace it and then from that time on I will be replacing her MicKey Button at home every three months.

We also meet with Gabrielle's Nutritionist today because we are running out of the pancreatic enzymes she has been taking and have to switch to one that is now FDA approved. Our hopes that the enzyme she had been taking would gain FDA approval prior to us running out did not come true. We are switching to Creon and hope that it will work for her. We are trying the Creon first since we still have to give the enzymes through her feeding tube. Of the FDA approved enzymes Creon has the smallest micro-spheres, or beads.